Metadata Inventory for Medical Researchers

Metadata Inventory for Medical Researchers

In addition to the primary purpose of procuring organs and tissues for transplantation, most organ procurement organization (OPOs) in the United States procure a large number of samples for the purpose of research. These samples are provided to researchers along with a few additional non-protected health information (PHI) data points to facilitate better matching for various comparative experiments.

During the last 3 decades, the Donor Network West Data Team has meticulously collected and archived a huge array of data points from all donors called Donor Network West Metadata Inventory (DNWMI). The data inventory includes but is not limited to Medical/Social history, complete blood count (CBC), donation after cardiac death (DCD) information, DCD evaluation results, blood culture results, and arterial blood gas (ABG). In fact, the total number of data points collected at DNWMI has reached more than one billion points. Performing analytics on big data collected under DNWMI enables data scientists from a variety of disciplines to uncover novel patterns, correlations, and gain insights in data with significant predictive value. In order to provide a better description of the nature of data points collected at DNWMI in each category, the original blank forms have been provided in this page. There is no doubt that accessing secure and non-PHI data would provide scientists an unprecedented opportunity to analyze our metadata for predictive and analytic research among many others.

Researchers from academic and non-profit organizations in the United States are encouraged to apply to access DNWMI. The application process is similar to the request for tissue samples in terms of evaluation and rigor. The application form for accessing DNWMI can be found here. Once the project is evaluated for adherence to ethical and legal guidelines and is approved by the Donor Network West Medical Advisory Board, the investigators will be given the opportunity to build their queries for searching DNWMI.

Medical Social - 456,932 Data Pts.

Cancer
Diabetes
Seizures

CBC - 169,473 Data Pts.

WBC
RBC
Hb

DCD Information - 160,656 Data Pts.

Observation Period
Warm Ischemic Time
Urine Output

DCD Evaluation - 132,655 Data Pts.

Heart Rate
Blood Pressure
Respiratory Rate

Culture Results - 119,902 Data Pts.

Clinical Infections
Blood
Urine

ABG - 77,525 Data Pts.

pH
pO2
pCO2

Chemistry - 72,554 Data Pts.

Creatinine
Glucose
Total Bilirubin

Flowsheet - 65,802 Data Pts.

Vital Signs
Vent Settings
Fluid Intake/Output

Diagnostics - 64,246 Data Pts.

X-Ray
CT
MRI

Serology - 59,582 Data Pts.

HBV
HCV
HIV

Hemodynamics/Temp - 54,154 Data Pts.

Lowest/Highest BP
Lowest/Highest HR
Lowest/Highest Temp.

Brain Stem - 28,326 Data Pts.

Cough Reflex
Pupillary Reaction
Gag Reflex

Blood Proteins - 23,177 Data Pts.

Albumin
Amylase
Alkaline Phosphatase

Urine Analysis - 18,214 Data Pts.

Protein
Glucose
pH

CBC Other - 10,548 Data Pts.

Platelets
Lymphocytes
Eosinophil

Legend:

Donor Network West Metadata inventory (DNWMI) includes medical social, complete blood count (CBC), donation after cardiac death (DCD) information, DCD evaluation results, blood culture results, and arterial blood gas (ABG). The numbers refer to the total number of data points collected for each category.
WBC: White blood cells | RBC: Red blood cells | Hb: Hemoglobin | pO2: Oxygen partial pressure | pCo2: Co2 partial pressure